Share my experience

Your Story Can Spark the Next Breakthrough

Every experience matters

Every new app, treatment, or support program begins with a single insight from someone who understands the reality of living with a condition. At Esperity, we turn those insights into concrete solutions that improve quality of life for millions. By joining our insight-generation initiatives—advisory boards, focus groups, one-to-one interviews, or quick surveys—you amplify the patient voice where it matters most: research, product design, and policy.

How It Works

  • Tell us you’re interested – Leave your contact details in the form below (it takes less than two minutes).

  • We match you to a project – Our team reviews each profile and invites you to the sessions most relevant to your experience and availability.

  • Share in a safe space – All activities follow rigorous ethics and privacy standards (GDPR & HIPAA). Your data are anonymised unless you say otherwise.

  • See the impact – We keep you updated on how your input shaped new tools, clinical trials, or educational resources.

Current Voices We’re Seeking

Migraine

Frequent migraines can derail work, family life, and social plans. Help us map triggers, treatment gaps, and the small wins that make a big difference. Ready to share? Leave your details below and we’ll reach out.

Chronic Lymphocytic Leukemia (CLL)

From watch-and-wait to targeted therapies, every CLL journey is unique. We’re gathering real-world stories to improve decision aids and clinical-trial design. Sign up to add your voice.

Thyroid Eye Disease

Bulging eyes, vision changes, and daily discomfort often go far beyond cosmetic concern. Your experience can guide new symptom-tracking tools and educational content. Interested? Connect with us below.

Chronic Cough

A persistent cough can be exhausting—and isolating. Join our discussion groups to highlight diagnostic delays and test novel self-management tips. Leave your contact details to participate.

COPD

COPD can have a big impact on quality of life. We are searching for COPD patients to be part of our advisory board of a research project with the university of Brussels.

Amyloidosis

Living with amyloidosis means navigating rare-disease uncertainty. Share your challenges and coping strategies to shape upcoming awareness campaigns. Register your interest in the form.

Lung Cancer

From navigating complex treatment choices to managing breathlessness and fatigue, your lived experience is vital for shaping better support tools and clinical-trial priorities. Share your story by leaving your contact details below and we’ll be in touch.

Ways to participate

 

  • Virtual advisory boards 

  • Small-group sessions  

  • One-to-one interviews 

  • Online surveys & diaries  

 

Join our Facebook community

Prefer to connect first? Visit our Facebook community for peer support, event announcements, and research updates.

Have Questions

Email [email protected] or simply fill out the form below—our team will get back to you within two business days. Together, we can transform experience into innovation.

 

Or fill in the contact form.